Lhunpaurwen's Ramblings

Still alive. Been really sick on and off multiple times with flairups, including falls and passing out. Started as soon as the temperatures began to get warmer outside. Been borderline heat stroke every day since. Can't get anything done because I overheat too easy, even inside with the AC running full blast. The little energy I have has been totally devoted to preparing for my Disability Hearing at the end of August. I haven't really been online on FB or anywhere else at all since April or May, so if I missed anything major, I apologize. Thank you all for the birthday wishes back in May, they helped cheer me up while I was sick. Hoping it cools off outside soon. I hope all is well for all of you. If I missed anything you want me to know about, please share. I will catch up as I am able to, but probably won't be real active till after my Disability Hearing on August 31st. Positive thoughts and prayers for a positive outcome are appreciated. Wish me luck!

I have been pretty sick since last time I updated. I started physical therapy again the week before it hit really bad. It's a flairup caused from over exerting myself, and amplified by the weird changes in the weather here. Haven't been sleeping well to begin with, so getting up to tend to puppy stuff wasn't as much an issue. It got bad enough that I almost had a full syncope attack during my physical therapy, and probably fully would have if Ember hadn't alerted me in time so I could stop what I was doing and get to a safe position and warn the staff just in case. To make matters worse I ended up falling during some hardcore pre-syncope roller coaster rides at home. Bruised myself up pretty good and was sore as hell. Only to have to go right to the radiology appointments and be asked to contort myself in weird ways and get poked and prodded so they could do the scans, which further pushed my pain threshold. Poor Ember has been hyper vigilant like she always gets when I get a flairup this bad. Unfortunately she has gotten to a point where it is increasingly difficult for her to do anything for me anymore. There have been several times where she lost her footing while counter balancing me and I almost fell down or into something. I haven't been using her for the balance and bracing assist as much because I don't want to hurt her or myself, and that has only made the flairup that much worse because of the added strain on my body. I am getting to where I can use my hands again, now that the random painful skin splitting,bleeding, and other pleasantries that come with these flairs is calming some. One tiny scratch I got on my pinky morphed into a huge gash and kept refusing to stay closed and heal even with bandaids, ointments, and finally going as far as using liquid bandage to hold it together. It was very painful. A similar split formed on the corner of my thumb and has been almost as challenging to convince to stop splitting open and start healing. Even still, I have managed to get 15 ceramic bowl dishes formed and drying as greenware, to be bisqued, glazed and fired to finish, a commission intended for office holiday gifts. I also have full intentions to work on that dog portrait painting, even if I have to fully bandage my hands to do so. I will stream while working on it, aiming for this Friday 16th around 8pm CST for anyone interested.

I have been dragging through the past two months or so with a Sjögren's flair up. I get them regularly and stress and weather conditions, alongside complications from my Ehlers-Danlos and other conditions, can make them worse.

Been having a horrible time with my tooth and jaw issues. The nerve pain has gotten so bad I have had to increase the amount of Gabapentin I am taking and taking it to near maximum daily allowances just to get relief. It's gotten so bad I have had to blender things I eat and stick to eating soft stuff. It's insanely frustrating because the pain is so bad at points between it and the Gaba I can't think straight or get anything done. I have a whole mess of updates and things to share for Chakotay that are back logged, among other things.

This is one of the first days the Gaba has been able to control the pain enough for me to sit and type some. I also have some medical updates but that will come in a different post and may wait till Monday since I have an appointment with my Rheumatologist. Hope everyone else is fairing better and doing well.

Please send your love, positive thoughts, prayers, and healing energy to one of my sweet cats, and her mom Jen. Girlie ( formerly Ash ) was just diagnosed with cancer of the mammary gland (like breast cancer in cats). She will have x-rays and ultrasound done to see if the cancer has spread. Then we'll know what sort of surgery options and other treatments like chemo are available. We'll likely be setting up crowdfunding and accepting donations to help cover costs of surgery and treatments. I will post an update when I know more. So much love for our little floof. Bast keep her safe.