leopardwolf: (Default)
The Rottie Unfortunately Diva ( an affectionate nickname we gave her ) the Rottweiler puppy didn't work out. After further evaluation and working with her, it was obvious that she just didn't have the right characteristics for assistance dog work. She's still a great little puppy full of potential. but she'd make a better family dog, which is exactly what she will be. With the help of the woman I got her from, we contacted someone else who had responded with interest in the puppy after I had taken her. They are a family of Rottie enthusiasts who have had them all their lives, and it was clearly a perfect match. Some things are just meant to be. New Puppy Afterwards I did come across another puppy. This one was admittedly younger than I am normally comfortable with taking a pup for evaluation, but the mother dog had stopped nursing the litter and they had been taken by the owner's daughter to care for and find homes for. The daughter has experience with animal rescue and rehab, so the pups were in good hands and well adjusted for such a young age. The new puppy is a Labrador ( Chocolate ) / Great Pyrenees mix, who is currently six weeks old. She passed the temperament test and startle recovery test far better than I expected. She has a beautiful personality and is very willing to stay engaged. She is a confident little puppy sponge. She is playful and curious, and has potential. The only thing I am uncertain of is if she will be large enough as an adult. Hoping there is a mega growth spurt coming soon. We are playing the name game to see what fits her best. Some names up for consideration: Keala ( Pathfinder, the path ) Raksha ( protection, nurture, pathfinder symbology ) Jakara River Aina ( Joy, Forever, Celtic/Finnish ) Jera Seeker Rain / Rainy Amaya ( Night rain, Japanese ) Zephyr Another Dog So Soon? Something I feel I should say for those who don't know me well enough. Some might look at this as me playing "musical puppies" and think it callous of me. I want it to be understood I don't make any of these decisions lightly. My animals are my family. In the case of these dogs I am evaluating and "trying out" for lack of better phrasing, I get just as attached to them as I am to my animals that have been lifelong companions. The difference in the end however is that I can't let those emotions rule my judgement, if I know that animal is not a good fit for the work I need it to be able to do. I love and respect the animals. I can't force them to be something they are not. I need a very special type of dog, with a very special personality and abilities to adapt to things that most dogs would want to avoid. I need a special dog that will ignore all those pressures and just enjoy working with me and going places with me as my partner. Assistance dogs are considered medical equipment, not pets. Realistically I need to look at it that way and remind myself I can't keep them all, as attached as I get to them through this process of attempting to owner train my new service dog partner. It makes letting them go that much harder. Even if it doesn't work out, I always make sure the dog is going to a good, responsible home, and I keep in touch with and follow up to be sure everything works out. The same as I have always done for any animals I have rescued and fostered over the years. I have seen too many people who owner train use dogs that really should not be working any form of public access, for one reason or another. It is not fair to the dog to try and force it to be something it is not. Doing so would set a bad example on me as a trainer, and be a poor representation of the assistance dog communities as a whole. That is why I am being as selective as I am. Because it is the right thing to do, and it is necessary to ensure my dog is not a liability in public.
leopardwolf: (Default)
I have been pretty sick since last time I updated. I started physical therapy again the week before it hit really bad. It's a flairup caused from over exerting myself, and amplified by the weird changes in the weather here. Haven't been sleeping well to begin with, so getting up to tend to puppy stuff wasn't as much an issue. It got bad enough that I almost had a full syncope attack during my physical therapy, and probably fully would have if Ember hadn't alerted me in time so I could stop what I was doing and get to a safe position and warn the staff just in case. To make matters worse I ended up falling during some hardcore pre-syncope roller coaster rides at home. Bruised myself up pretty good and was sore as hell. Only to have to go right to the radiology appointments and be asked to contort myself in weird ways and get poked and prodded so they could do the scans, which further pushed my pain threshold. Poor Ember has been hyper vigilant like she always gets when I get a flairup this bad. Unfortunately she has gotten to a point where it is increasingly difficult for her to do anything for me anymore. There have been several times where she lost her footing while counter balancing me and I almost fell down or into something. I haven't been using her for the balance and bracing assist as much because I don't want to hurt her or myself, and that has only made the flairup that much worse because of the added strain on my body. I am getting to where I can use my hands again, now that the random painful skin splitting,bleeding, and other pleasantries that come with these flairs is calming some. One tiny scratch I got on my pinky morphed into a huge gash and kept refusing to stay closed and heal even with bandaids, ointments, and finally going as far as using liquid bandage to hold it together. It was very painful. A similar split formed on the corner of my thumb and has been almost as challenging to convince to stop splitting open and start healing. Even still, I have managed to get 15 ceramic bowl dishes formed and drying as greenware, to be bisqued, glazed and fired to finish, a commission intended for office holiday gifts. I also have full intentions to work on that dog portrait painting, even if I have to fully bandage my hands to do so. I will stream while working on it, aiming for this Friday 16th around 8pm CST for anyone interested.

Am I back yet?

Tuesday, July 26th, 2016 10:10 pm
leopardwolf: (My Mind Escapes Me)
Just when I thought I'd be back and be able to catch up with online interactions, something else comes up. Dealing with things as best as I can. Most of it doesn't warrant expending the energy to mention. Some of it meh. Some of it sad. Most recent being the loss of one of my aunts to medical complications. It was sudden and unexpected, and still hard to accept. The circumstances around it have made me reflect on my own health issues. I have been in some bad mindspace, so I chose not to burden others with it. Not any different than any negativity I have shared in the past, so why sound like a broken record.

In better news, the Medicaid expansion finally hit. I got everything with it straightened out, I think. I went and saw my eye specialist and my rheumatologist. It was finally decided since we'd tried everything else with limited results, it was time to try adding immunosuppressants. I have been taking Plaquenil and Restasis since then. I wasn't able to until now without insurance, because the Restasis alone would have been over $500 per monthly supply out of pocket, similar to the problems I had with getting my Cymbalta before it went generic.

There is no generic for Restasis, so I am having to fight for a prior authorization for it. The insurance allowed the first month purchase to go through so I would have it, so kudos to them for thinking of the patient in these situations. Now I just hope they are reasonable to approve the prior auth since it is literally the only medication of its class and kind so there are no alternative treatments available to substitute. I also saw my new primary and she seems pretty awesome. A lot like my awesome Mayo doctor was the first time we met. Getting referrals for lab work and to see an orthopedic specialist, neurologist, and endocrinologist finally, after waiting an eternity. Here is to hoping I can get approvals for a bone density scan and MRI real soon.


Finished gathering, compiling, and submitting all the information for my Disability appeal. My rheumatologist and I sat down and compiled a whole slew of things to throw at them, based on their own listing criteria, and directly quoted those criteria and offered detailed information for a functionality report based on models they use, which should be more than enough medical evidence to support my claim and get approval. Now it is just a matter of waiting again. It could take a year or more before the case is even issued to a judge. Unless someone in the processing department reviews it and sees how blatantly it is that I meet listing level criteria and should have been approved the first time around. Jump. Through. Hoops. Makes my fur bristle the more I have to conform to their inadequate process.

The benefit of waiting is that it gives me that much more time to research and be thoroughly prepared for the hearing when the time comes. I did speak with a helpful woman in their support department who sent me some information for legal assistance for low/no income individuals. I plan to utilize it if I am able to. It's not the same as retaining a private attorney, but I'm sure I can learn something either way if I qualify to use it.

Back to catching up on things I missed.
leopardwolf: (My Mind Escapes Me)
I have been dragging through the past two months or so with a Sjögren's flair up. I get them regularly and stress and weather conditions, alongside complications from my Ehlers-Danlos and other conditions, can make them worse.

Been having a horrible time with my tooth and jaw issues. The nerve pain has gotten so bad I have had to increase the amount of Gabapentin I am taking and taking it to near maximum daily allowances just to get relief. It's gotten so bad I have had to blender things I eat and stick to eating soft stuff. It's insanely frustrating because the pain is so bad at points between it and the Gaba I can't think straight or get anything done. I have a whole mess of updates and things to share for Chakotay that are back logged, among other things.

This is one of the first days the Gaba has been able to control the pain enough for me to sit and type some. I also have some medical updates but that will come in a different post and may wait till Monday since I have an appointment with my Rheumatologist. Hope everyone else is fairing better and doing well.
leopardwolf: (My Mind Escapes Me)
This week has been utterly insane in the amount of flail worthy happenings.

One thing after another, little things adding up at first, and then some big things that left me cursing Murphey's Law.


Hard Drive Crash

The icing on that cake was one of my main hard drives just suddenly... dying. It was from my old system, along with another drive that I thought actually had problems and was cautious not to put anything important on, even naming it "iffy drive". But nooope, it is still working for the moment.

Instead the drive I had all my Steam games, saves, mods, etc on and a plethora of other stuff I hadn't fully copied ( I was running out of room on my portable drive -- which also might be going bad )....all poof! No warning. It was fine when I went to bed, woke up the next day and tried to access something from it and got an error that the content didn't exist at that location. Which made me click on something else, getting the same error... my heart sinking as I opened my system info and the hard drive was no longer listed.

It sucks, but it's not as bad as some hard drive crashes I have had. I didn't lose every single thing. That only happened once when I was younger and first getting into computers, and after that, I religiously backed up everything multiple times if I could. Because, with my luck, this sort of thing always happens. Mike was kind enough to order a new hard drive to replace it, as part of my birthday present. I need it for art stuff and Skyrim and Fallout offer me some happy when I am not able to do anything else.

Anyway, the drive came yesterday and I went to install it. Rebooted. Nothing. No new drive showing. Which led to a hours of troubleshooting to conclude that thanks to Murphey's Law, I received a brand new hard drive that was DOA.

Seriously, what are the chances? I am sending it back for a replacement. We're hoping it is only that the new drive was also dead. Otherwise the only other possibility is a motherboard problem. With this brand new motherboard in this new system. Which is going to make me flail to epic proportions because going through the warranty replacement process for that, having to take the whole computer apart and basically rebuild it and reinstall Windows... nope. Not looking forward to that at all.


Osteopenia Confirmed, Dental Blarghs

In medical news I am still waiting to hear from SSA. Saw my Rheumatologist yesterday, and he did mention he'd just gotten something from SSA and hadn't had a chance to see what it was yet. So we'll see what happens with that. I told him about my fall and ankle/shin injury and how I was still having pain from it. He wrote me a prescription for some sort of topical that is different from the one for my wrist.

He also changed my Gabapentin prescription due to some issues I have had with the low income charity pharmacy giving me a hard time refilling it this week (because I blew through a 3 month supply in a month due to increasing problems with my teeth and jaws) and I had actually run out. It's not a medication you can just stop taking cold turkey. I had to argue with them and beg to have their staff ask my doctor there to give me enough to cover until I could see my Rheuma this week, since I wouldn't be able to get an appointment soon enough with her. My teeth/jaw have gotten so bad I actually had to finally resort to putting stuff in the food processor to make it more manageable since I can't really chew much of anything with my damaged teeth, without feeling excruciating pain. Nerve pain is horrid and unforgiving.

I showed my Rheumatologist that Mayo Clinic radiology report that the fill-in doc ( who took over when my awesome doc left for his fellowship) totally fucked up on. He confirmed it does show Osteopenia in my lumbar spine. Though at first he didn't see it, and did the same thing I think the Mayo doctor did. The hip values were okay and the info runs together. He glanced right over it until I pointed right at it and he went back and more carefully read the values and went "Ahh, yep. Osteopenia." So he wants me to get a bone density scan done as soon as I can, which will be when the Medicaid expansion hits hopefully in July. It could be what's partly causing my lower back problems. Plan is to get lab work done to see if my blood calcium levels are abnormal/high without the supplement. See if there is any change in the spine scan, and go from there. Just hope another two months or more doesn't make a huge difference on top of the 3 years I didn't know. Everyone makes mistakes. It just sucks when a doctor does it and it could risk such a damaging and life changing condition becoming worse from not knowing soon enough. Same reason I need to get that MRI done to rule out MS and some other neurological concerns based on certain symptoms I have had.


More later.
leopardwolf: (Default)
Apologies for the recent radio silence. Been having a real rough go at it the past week or so. My teeth/jaws have gotten worse and the changing weather makes them flair real bad. The nerve pain I get from it is overwhelming. My Gaba meds just manage to take the edge off. But then breakthrough pain hits and I take more Gaba to beat it back. Once enough is in my system, sedating effects kick in and I am lucky if I can manage to remain awake and coherent to get anything done.

On top of that, Wasabi has been sick recently and unexpected vet bills popped up. He is stable for the moment and on a new special diet, but may need surgery for teeth and other stuff. Really uneasy about putting him under with his age of around 12 years old ( he was an adult farm rescue estimated at a year or so old when I found him ).

I had Chakotay in two training classes, but had to drop one to get the refund because his next round of vaccinations are due and I didn't get money I was supposed to for that because of other drama. The only reason we can remain in the other is because a friend/fellow trainer is kind enough to let us sit in on a puppy class she has as an assistant trainer so Chakotay still gets the exposure and socialization. Really need to generate more money for service dog purposes.

Still waiting to hear back from SSA. Have a doctor's appointment on the 12th with my Rheumatologist. Trying to find out about getting in for oral surgery somewhere so I can FINALLY get these horrible teeth taken care of. They need to come out and I need implants, which is going to cost a small fortune ( insurance does not cover implants normally, even if I had insurance, which I do not). Because of my EDS and other medical quirks, I can't do dentures. The longer I wait, the worse it gets and I am risking more serious bone loss and complications in my jaw and facial structure. I am already in constant pain and having major difficulties chewing/eating and talking for extended amounts of time. It is miserable, but there isn't much I can do without the money.

I tried going through LSU dental school but haven't heard back on the new referral in months and last I asked they claimed they didn't do them anyway ( which I find odd since you know, where else is a dental surgeon going to learn to do the procedure? ). They told me I'd have to find somewhere else to go. So now I am searching for an oral surgeon locally who might empathize with my situation and be willing to somehow work with me before this becomes more serious than it already is and requires more extensive corrective surgery of not just dental structure, but entire jaw bone structure.

Happier updates with puppy pictures and art stuff later.
leopardwolf: (Default)
Quick update. Ankle is still tender but as long as I am not on it too long I can tolerate the pain enough to walk on it for short amounts of time and for short distances. Puppy is doing good, will write more about that in a puppy update I am working on.


Getting increasingly aggravated with the SSA and this disability determination process. They sent me ANOTHER letter requesting info I already gave them. This is the third time they have done so.

I filled out the application online and it specifically asked for this info and I filled in the blanks. Then I also submitted it with the info I gave them to copy in person. All of that info was carefully organized and selected because they had already asked for it, or I knew they would ask for it, so I included it thinking it would help them and make the process more efficient.

So how can you not have it and still be requesting it unless clearly you haven't bothered to actually look through my entire file?

Or you are just wasting time, resources and paper.

The fact that one of my conditions is actually listed on the SSA "auto determination list" should make this entire process totally irrelevant. But noooope.

Because, government.
leopardwolf: (Default)
Disability Stuff

This month is flying by. Have had so much going on with finalizing my filing with the SSA. A few aggravations along the way, but those were made up for by going in to drop off paperwork for SSDI and unexpectedly getting to apply for SSI without needing an appointment as I originally thought I would. Everything sort of fell into place just right. It is all done, and now the waiting game. Hoping for the best, but expecting the worst. I did a lot of reading and research into the process, and spoke with others who went through it. I spent the last year compiling *everything* from my medical records and digging up old documents for FMLA and similar, and writing thoroughly (30+ pages worth) explaining everything in depth and fine detail. With everything else I have done to prepare, I think I have a strong case. Burden of proof is all on me, and I think I have done everything I possibly can. I probably presented the materials much more thoroughly than most people do.


CPL / Service Dog Stuff

Speaking of flying. I fly out this coming week to New Jersey. Going to drive out to Pennsylvania for a CPL support class, where I will have a chance to meet service dog teams from CPL's program. Looking forward to meeting the people and their canine partners who I already know, in person rather than just online. Looking forward to meeting new people and dogs too. Hoping I'll get to interact more with the staff and ask everyone there all sorts of questions. We also have plans to go to a trade show while I am there. Hoping to find some resources and business connections for future investments. Lots of excitement planned, just have to find a way to make it all a reality. One step at a time.


Back And Dental Stuff

My back is feeling a bit better, and almost "normal" again. Hoping it stays that way. I ordered an ortho brace online and have been wearing it as needed to avoid further stress or injury. I found out I have Osteopenia in my lumbar spine. I came across an old radiology report while gathering files for SSA that I hadn't seen before, from just before we moved from Minnesota. Supposedly my old doctor in Minnesota didn't bother to tell me because she didn't feel the overall average of everything added up on the test was out of the ordinary enough. But the radiologist clearly marked it as Osteopenia. Seriously, *any* kind of bone density loss can be a bad thing, *especially* if it is in your SPINE. You have a duty to tell someone that, especially when they are taking medications that are known to *leech calcium* which puts them at increased risk. *Especially* *especially* after you told them to *stop taking their calcium supplement* because their blood serum calcium level was higher than normal. Even not taking it anymore it is still abnormally high. Not to mention the medical diagnoses I have gotten since then and how they'd relate to something like low bone density in the spine. I have to get another bone density scan as soon as I can somehow afford it ( add that to the list with the MRI I really need ) and pray 3+ years not knowing and being off calcium supplements hasn't caused more damage and I can start taking more direct preventative measures to improve or at least prevent further loss. Had some horrid snarky issues with my teeth ongoing and once again looking at needing oral surgery. Trying to find somewhere to get it done under full sedation. It's insane how difficult it is to find something like that, and worse when you don't have any coverage for it.


Otherwise things are okay as they can be. Taking it one day at a time and focusing on the good stuff. Hope everyone is doing well.

Back Gone Out

Tuesday, March 1st, 2016 08:50 pm
leopardwolf: (Default)
So. Much. Pain. I somehow managed to hurt my back over a week ago and could hardly move when it first happened. After a few days of TENSing, pain creams, Gaba, and resting and hobbling in crazy ways to stay comfortable, it finally felt a little better yesterday. Then today I had to go to the dentist. And it hurt, a lot. The numbing agent they use doesn't work on me, and even taking two Gaba before I still felt it ( though probably less than if I had not taken Gaba ). Ember was worried sick as she lay over in the corner watching and I had to reinforce her stay a few times because she was concerned if I was okay and sensed I was in pain and having pre-syncope symptoms. My hip was bothering me earlier from subluxing, but I finally popped it back into place and felt okay for about 30mins after. I don't know if it was tension from the dental appt or having to drive that did it, but now I can hardly move or bend or twist/turn again without horrible pain. Doesn't matter if I sit or stand or lay, still hurts. I have already fallen behind in my schedule for getting stuff done because of it and because of the insane bad weather that passed through this area last week. I am waiting for an ortho back brace to come tomorrow, and hoping it offers some kind of relief or at least support so this damned thing heals. I can't stand not being able to do anything without feeling this kind of pain, on top of the nerve pain I already feel from my stupid teeth. Don't mind me, just need to vent and write about it so I have a record and reminder of it I can look back at later. There is other news medical and back related that may not be good, that I ironically came across while getting everything ready for the disability case. I haven't wanted to say until it's a pretty sure thing, and only a handful of people know about it. I really need to get XRays and an MRI, but this shitty excuse for GNO citycare doesn't cover that kind of thing. Having to wait till June/July or after and pray the Medicaid expansion really does FINALLY go through thanks to the new governor overruling the old asshole's block on it.....it can't come soon enough. I'm not sure if I can wait if this doesn't let up, but I don't really want to have to go through the horrid local ER system like I did before with my wrist and get absolutely no help and waste time and energy I don't have doing so. So in the meantime I will flail ineffectively and smell of menthol as I electrocute myself. Hope everyone else is doing well.
leopardwolf: (Default)
I have been a little scarce recently. Taking care of medical related stuff. I am finalizing my Disability/Medicaid application process next week. I will be going in person with faithful Ember at my side to present my 3inch+ thick folder of medical records and documents, letters of support ( thanks again to those who wrote them ), and fully detailed write-up of my conditions and their effects on activities of daily living and how they adversely effect my ability to work for gainful employment ( lack thereof ) or enjoy activities the way I could before my body decided to try and self destruct. I am going in fully expecting I will be denied the first time and will have to appeal. They normally almost always deny you the first time, even if you have a metric ton of supporting evidence like I do. If by some miracle I get approved on the first try, it will be so totally unexpected I will implode from sheer relief and happiness. I won't hold my breath though. Thoughts, prayers, luck, and well wishes are greatly appreciated!

Jaw Dislocations

Tuesday, October 13th, 2015 07:50 pm
leopardwolf: (My Mind Escapes Me)
So however long ago it was that my jaw got stuck open that one night where I couldn't close it, and had to pop it back in place, apparently my jaw has been dislocated all this time since!

Which must be why the grinding/popping stuff got so much worse, and was hurting more, I could hardly chew or open my mouth fully. It started bothering me real bad the past week or so. I tried flexing and massaging and pushing at the area for some relief. I popped it the other night and had a sharp pain at the hinge area the past few days. Been taking Gaba, and the nerve pain in the jaw hinge finally let up and I noticed today I could chew mostly normal. I was just able to eat a hamburger for dinner mostly normally for the first time in goodness knows how long!! There is still popping sensations like I had prior to the dislocation, but not nearly as frequent or as painful. Trying to be extra careful with it. Fingers crossed it behaves itself.
leopardwolf: (Lhunie Floof - Foxfeather)
As of Friday I heard back from CPL about my application for a new assistance dog.

"Your application is with the trainers. I want to let you know that Fall Team Training will start Saturday so we are in hyper drive here so the trainers might not get a chance to review the application until after team training. - Carol"

Fingers crossed this puts me one step closer to being accepted!


http://www.youcaring.com/brittney-steptoe-428674
leopardwolf: (Default)
Apologies for the lapse in presence on and off recently. I have been busy for a little while working on putting together all of this information for my disability application process. Digging through old paperwork to find things to use ( thank goodness I kept it ), collecting and sorting documents from providers. Just waiting on responses from two doctors and that should do it. I wrote a ton of things with medical jargon and ICD-10 codes to throw at them. 10+ pages to tell them how all this affects my daily life and ability to function. Hoping "doing the work for them" will strengthen my case some, but not holding my breathe. I expect I will be denied the first go-round, as that seems like the popular thing for them to do. Will probably be submitting everything before the end of the month. Anyone interested in reading any of it and giving their input? Also on that note, would anyone like to write anything on my behalf for me to submit to them? On why you feel I should be able to finally get this help I needed ( and probably should have asked for ) years ago and why it is more important I have it going forward? I mean, lets face it. My body is self destructing itself one collagen molecule at a time. That isn't going to change anytime soon!

Snarky body

Saturday, October 3rd, 2015 07:35 pm
leopardwolf: (Default)
My body has been throwing a fit ever since I stopped working Journey. The more time passes without the help of a dog, the worse I feel. I haven't really been out anywhere in nearly two weeks but I finally had to go pick up a few groceries. So sore and exhausted afterwards. My hips, knees, back, and ankles are seriously on the warpath and my normal exercises are not helping. Soaking in a warm bath or TENS is only temporary. Gaba helps for breakthrough, but I am having to take it more frequently to control things during the flairs which increases fatigue and cognitive difficulties. Changes in weather probably aren't helping either. Migraine keeps coming and going. I hope one of these organizations will accept me to receive a new assistance dog. Otherwise I am not sure what I am going to do. One day at a time.

Migraines suck

Saturday, September 19th, 2015 10:19 pm
leopardwolf: (My Mind Escapes Me)
Of course it figures that tonight when I decide to try and do things, since I gave myself time off to recover from the jewelry show outing last week, my body doesn't agree. Migraines suck. Felt it starting earlier and tried to fight it off, but it's gotten to eye socket stabbing proportions. I will take more Gaba, sniff tiger balm, and hope it will ease up so I can do a few more productive things tonight. If not, there's always tomorrow... or the next day.... or the next day.
leopardwolf: (Default)
Past week has been crazy. Computer problems. Desktop formatted ( finally! ugh ) and Win7 Pro installed. Been fighting with plethora of updates and reinstalling all of my programs and sorting through files. Stuff with Journey's medical diagnostic still sinking in. Tried to do some shopping runs without him. So insanely exhausted afterwards I could hardly move and hurt worse than normal. Him pulling the cart helps so much. Horribly tempted to keep working with him at least until I get approved for a new dog. Maybe doing so infrequently would be okay, on days I really need it.

Like tomorrow. I had plans to go to the gem and jewelry show. I haven't been in over 10yrs (since we weren't living here), and so I made plans before learning about Journey, to go. My mom and aunt gave me a little spending money and Mike is giving me a little also, so I can pick up some much needed supplies at far cheaper prices than I would pay anywhere else. I was hoping someone would come along with me, but everyone has to work or is otherwise indisposed. I know my limits, and I know I couldn't walk around the crowded convention center alone for that long, without risk of triggering a neurocardio attack.

So Journey is going with me tomorrow. He's been off duty for a week and can't understand why I keep going places without him. It's normally better to ease them into retirement anyway, like I did with Ember. As long as I don't do any full heavy weight bearing things with him ( which I never, ever have ) then it should be safe for us both on a limited basis. Fingers crossed I hear back on these applications soon.

Anything special anyone wants me to look for at the gem and jewelry show? Any specific gems, stones or colors or materials you'd like to see me work with?
leopardwolf: (Default)
Wow! You guys are awesome! Since the first post, we have already raised $80 and have more on the way for the fundraiser. Please consider donating. Even a $1 goes a long way, because if 50 people donate a $1, that is another $50! If you can find it in you to pass on that Starbucks for one day, toss that $5 our way!

Share and encourage people to check it out and share as well. Remember, you guys are helping me keep my independence and safety by doing this!

Thank you so much!


PayPal is leopardwolf@gmail.com

or


http://www.youcaring.com/brittney-steptoe-428674


or



http://www.gofundme.com/steptoe-sdfund
leopardwolf: (Default)
This fundraiser is to help me acquire a new service dog for mobility assist and medical alert purposes.



I suffer from chronic medical conditions, including a genetic connective tissue disorder known as Ehlers-Danlos, and conditions that affect my autonomic nervous system, my own causing neurocardiogenic issues with my heart and blood flow.



My service dogs are life savers. They have been trained to sense certain chemical changes and alert me to them, to keep me out of danger. They help me navigate daily life safely.



Journey, my current service dog, has hip dysplasia. Which basically ends his short career as a mobility assist and medical alert service dog. Losing him as my lifeline and partner is a huge loss of freedom for me in my daily life.



I now need to apply through an organization for a new assistance dog. I need to come up with money for the applications fees, which are $25 to $50 per organization. Then wait to be approved and matched with a dog. I need to start a huge fund raising effort to help me get the assistance dog I need, which in the end will likely cost over $5,000.





I don't have the financial ability to owner-trainer another dog myself like I did with Ember (my first dog) and Journey. It took me a year just to find Journey ( after reviewing countless candidates ). It's the risk of owner-training, you might think you find the perfect dog, but something unexpected could always happen.



I can't keep going through dog after dog after dog covering expenses for vet work, training, etc. just to have them not work out and have to start all over again. Which is why I am making the hard decision to turn toward an organization for an already trained dog. Getting one through an organization also means if I have problems in the future, or when the dog is ready to retire, I can get a successor dog through the program.





I will most likely end up approved going through Canine Partners For Life, which is located in Pennsylvania.



I need to travel to their facility for team training, which is a 3 week program. All expenses for travel to get there, hotel, plus transportation while there, cost for food and for admission to places for field trips during team training are my responsibility.



Here is info they give about related expenses coming out of my own pocket:



= = =



To purchase basic supplies for the dog - cost approximately $300-$400.





To travel, at your expense, to CPL for a 3-week, mandatory team training session.





To arrange for your accommodations for the 3-week training session. Cost for hotel and meals are approximately $2000. Free housing with volunteers may be available but not guaranteed.





To arrange and pay for your daily transportation to and from CPL and on field trips for the 3-week training session.







To provide your own meals (breakfast, lunches & dinners) including some field trips out for meals (and for your aide if one accompanies you).







To provide your admission costs for field trips during 3-week training session – approximately $100 to $200 per person (and for aide if one accompanies you).







A requested donation (to be determined by a sliding scale – ranging from $1,000 - $3,000) should be sent to CPL before the start of team training.





Medical Alert students must be accompanied by another person during the entire 3-week team training session. ( *** This applies to me, which means I also need someone to go with me and cover their expenses too )





= = =





This same sort of thing holds true for the other programs I qualify for. I have to travel to their facilities and pay for everything in the process, plus the money for the dog itself. Some organizations are able to offer dogs at no charge to their clients, but none that do service my area, or they do not train dogs to assist with the things I need help with or have other specific requirements for clients that I don't fall under.







I basically have to come up with over $5,000 to get a new service dog, before I can even get the dog.







I am starting that fund raising campaign now, in hopes I will have enough saved by the time I am approved and matched with a dog through one of these programs.







If you want to donate directly to me, my PayPal is leopardwolf@gmail.com



Here are links to fundraisers set both on YouCaring and GoFundMe:


http://www.youcaring.com/brittney-steptoe-428674


http://www.gofundme.com/steptoe-sdfund



You can share those links, this post directly, or both.



I also plan to try to reach out to local charities and businesses for assistance. Either in hopes of sponsorship or that they'd be willing to let me put up donation flyers and collection jars or something similar to help spread awareness and raise the needed funds.





If you are interested in reaching out to businesses or charities in your own area who may be willing to help, if you own a business and would like to help raise funds, or if you would like to help with fund raising through some other means, please contact me at leopardwolf@gmail.com so I can provide you with information on how to do so.





There is no donation too small. We are grateful for any and all financial help in reaching our goal.





Even if you cannot help financially, you can help by spreading word about this and posting it for more people to see. Share it with your family, your friends, and anyone else you think might be interested in helping. Encourage them to pass it along as well.



Feel free to post it to your LJ, FA, Facebook, Twitter, DevArt, Tumblr, blogs, and anywhere else such a post would be allowed.





Thank you for taking the time to read this. Thank you in advance for you consideration, your thoughts, your time and your donations.




Love and light,

Brittney
leopardwolf: (Stargazing Lhunie - SyMara)
Heard back from the vet. The doctor is out of town, but left info for his tech to give me. Journey does have hip dysplasia. :( The doc wants to refer us to an orthopedic specialist for something else he thinks may be happening, will get more info on that later. I have no choice but to wash Journey from training and stop working him. It's going to be a big adjustment for us both, and I have nothing to fall back on for help in the meantime.

I feel very alone because when I conveyed these things and mentioned now needing to apply to the service dog organizations anyway, my family's response was less than supportive and more feeling like them questioning why I even need one and maybe believing that I don't need one. Which hurt. A lot.

So, I am on my own. I need to somehow come up with money for the applications fees, which are $25 to $50 per organization. Then wait and hope.
leopardwolf: (Default)
******UPDATE: Thank you again SOOOOOO much to Emily/Arikla!!! She has generously offered to help cover the expenses for Journey's xrays and testing. Professional curiosity she claims. ;) Geeks will be geeks.******



Took Journey to the vet today. Seems like it might be the worst case scenario. Most likely hip dysplasia or something similar or something else effecting back end. They need to sedate for xrays. Bloodwork also needed to rule out any endocrine/pancreatic issue or any other problems or possible infections.

Got estimate papers from vet and discussed things. Going to be upwards of $720 for everything.

We just don't have that kind of money. I was supposed to bring him back tomorrow, provided we could pull some of the money out of thin air for at least the xrays. But now just thinking of not bothering.

Just assume he's screwed ( if not physically then from behavior quirks he's developed ) and wash him from training and service dog work.

Fundraising to get a service dog through an organization in PA isn't even likely an option either, because of expenses related to actually getting there and hotel to stay if volunteers can't let me stay with them. That would cost anywhere from $3,000 to $5,000 to make a reality. It's really shitty we were forced to move away from Can Do Canines service area and they can't help me.

Save everyone the money and trouble. I'll just carry a cane, blood pressure monitor, and hand grabber around with me from now on and hope for the best.

Profile

leopardwolf: (Default)
LeopardWolf - Lhunpaurwen - Lhunie

April 2017

S M T W T F S
      1
23 45678
9101112131415
16171819202122
23242526272829
30      

Syndicate

RSS Atom
Page generated Tuesday, July 25th, 2017 10:48 pm

Expand Cut Tags

No cut tags